Lucy’s Leukemic Observations

I never Expected a Bone Marrow Transplant

Yes it’s me… now trying to blog so anyone interested can keep up with my nonsense as I rumble down this unexpected journey towards a bone marrow transplant. Who would have thought it back in January when I was skiing with Zig in Meribel, without a care in the world.

Anyway, the story so far has been a routine blood test for something totally unrelated showed up a low white blood cell count. After a few further tests my consultant thought it was Hairy Cell Leukaemia, mildly troubling but it could be managed. Soon after that, a bone marrow biopsy showed Myloedysplasia for which the treatment could have been watch and wait, or a bone marrow transplant. Because of the low white blood cell count they decided that a bone marrow transplant would be the way to go.

So – more tests, and they roped in my sister Jane to be checked for a match. By this time my leukemic cells were up to 30% which was a shocker – and they now declared I have Acute Myeloid Leukaemia!! Unbelievable, it’s a rare disease, only about 2,000 people a year are diagnosed with it in the UK and most of them are over 65. Had to be me didn’t it!!

Jane turned out to be a brilliant 100% match, which was a miracle as there was only a 1 in 4 chance of that, and the decision to go with the bone marrow transplant was spot on as now there was no real choice.

Now this is my blog, a little overview of what’s happening, when and where, and how I am feeling. Feel free to leave comments, or find me on Facebook

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