Lucy’s Leukemic Observations

I never Expected a Bone Marrow Transplant

Yes it’s me… now trying to blog so anyone interested can keep up with my nonsense as I rumble down this unexpected journey towards a bone marrow transplant. Who would have thought it back in January when I was skiing with Zig in Meribel, without a care in the world.

Anyway, the story so far has been a routine blood test for something totally unrelated showed up a low white blood cell count. After a few further tests my consultant thought it was Hairy Cell Leukaemia, mildly troubling but it could be managed. Soon after that, a bone marrow biopsy showed Myloedysplasia for which the treatment could have been watch and wait, or a bone marrow transplant. Because of the low white blood cell count they decided that a bone marrow transplant would be the way to go.

So – more tests, and they roped in my sister Jane to be checked for a match. By this time my leukemic cells were up to 30% which was a shocker – and they now declared I have Acute Myeloid Leukaemia!! Unbelievable, it’s a rare disease, only about 2,000 people a year are diagnosed with it in the UK and most of them are over 65. Had to be me didn’t it!!

Jane turned out to be a brilliant 100% match, which was a miracle as there was only a 1 in 4 chance of that, and the decision to go with the bone marrow transplant was spot on as now there was no real choice.

Now this is my blog, a little overview of what’s happening, when and where, and how I am feeling. Feel free to leave comments, or find me on Facebook

20 thoughts on “Lucy’s Leukemic Observations

  1. We wish you all the best sweetheart and look forward to celebrating with a few large glasses together once it’s all over xxxxxx

  2. Hi Lucy, we’ve never met but I used to fly with Guy and have been following the posts on FB. Would like to say what an inspiration you are and how positive you seem through all this – always smiling, despite having to put up with Mr. L along with all your other stuff! Good luck with everything and will raise a glass (or two) in your honour. Love from Julie (Rhodes), hubby Dusty sends wishes too. Xxxx

  3. Hi Julie, although we haven’t met I know your and your husbands name well! Thank you for your kind comments and would love to meet up once all this little hiccup is over!! Xxx

      • Julie, Personally it would be a terrible idea!! Lucy, like Julie, you and I have never met but, know Guy through Virgin and the recent reunions. I send you all the luck and love in the world to fight this and stay positive until it’s over and you can get back on them slopes again 🙂 xx

  4. It’s a brilliant idea Lucy! We all love you and look forward to supporting to you in our different ways! You have a lovely sister who thinks the world of you!
    Xxxxxlove Liz xxxxxxx

  5. Hi Jill, thank you, Guy and I are going to Andy Buckmasters bar in London on Monday to check it out for your next virgin jollyup!! Xxx

  6. Thanks Liz, Jane came here for barby after Southampton yesterday and bless she had picked up all the injections she needs before transplant!! She is just the best and I love her dearly xx

  7. Enjoy your last night for a while on the vino my lovely. Will be thinking of you loads over the coming weeks. All our love xxxx

  8. Ditto Jan Jones – well said! That hospital better take real good care of our gal!!!! Put a little something in the post for you today Lucy – if Keith and I can help in any way please shout (or email)!!! Lots of love xxxx

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