chemo

One Final Thought

/ lucyhart13 / Leave a comment

As I was signing off, I suddenly thought back to the gruelling pre-transplant chemo treatment. It was awful. But as they say… you remember the good things, not the bad – and here we are four years later and I have almost forgotten the nastiness of it all. So I thought I would post a pic of one of my lists of chemo treatment. (This was at Southampton, I had already had two intense courses at St.Richards).

You can see, I ticked it off every day to help me count down each day and keep focussed on a positive outcome.

It was a bit daunting, but it can be done! If you suddenly find yourself faced with such an intimidating list – you know where to find me, so get in touch – even if you just want a bit of reassurance. Patient or partner/family member etc. Having gone through it, I am convinced it’s harder for your loved ones to watch the experience…

chemolist

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The best news all year!!!!!!

/ lucyhart13 / 9 Comments

For Andrew: The results are in, I am much better now thank you!

For everyone else… The results of the tests from the past few weeks are in, and I am disease free!!! No leukemic cells!!!!

I now have 90% Jane’s bone marrow and 30% of my immune system back. 90% is great for this stage but they are going to give me a top up of Jane’s lymphocyte cells on 9th December, just to get me a leg up to 100% HER, and this should help prevent the chances of it happening again!! The 30% immune system is all ‘memory’ which means I should now be safe from the illnesses and infections I have had before, although I still have to be careful.

So in answer to everyone’s question ‘has the chemo and transplant worked?’ YES IT HAS and I have my life back, THANKS Jane!!! And to all of you, supporting me and encouraging me on, I can’t tell you what it has meant!!! As what I have been through, I wouldn’t wish on anyone!! Whilst I am doing my Thank You Speech I would also like to thank Zig, as he has been to all of my appointments with me and held my hand every step of the way! I think, at times it has been harder for him! Thanks bebe!!!

I did manage to ask the question ‘will I be able to have a glass of red at Christmas? And the answer… POSSIBLY!!!!! I am taking that as a defo YES, The Kings Arms, Billi, here I come, Christmas Day!!!!!

I’m still not allowed out for lunch for dinner, but I can have fish and chips from the chippy!! I am definitely ‘on the up’! xx

Donor Poll

/ lucyhart13 / Leave a comment

Have been a bit quiet as the Chemo this week has really given me a good battering and I really didn’t feel like saying much. But I still wonder why people who need a bone marrow transplant often find it hard to find a donor in this day and age of social media and internet and whatnot.

So – I decided to take a straw poll. It’s completely anonymous and I would really be grateful if you would have a look. It’s a quick multiple choice – just choose 1 of 4, and it will really help me think how we can help others. Not everyone is as fortunate as me to have a fab sister who is a perfect match!!

Thank you. xx

Take the Poll